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This сма collects data from registries across сма world. To quickly find your national registry, start typing your country name into the box below. More Info Email Website www.

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сма More Info Email Website rcfm. The Argentinian SMA registry is сма active. For more information please contact Soledad Monges.

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More Info Email Сма The Australian Spinal Muscular Atrophy Registry collates clinical and genetic information about сма disease. The establishment of the Registry was made possible by the inter-jurisdictional cooperation of the state clinical and genetic testing services across the country with coordination and key support from the Office of Population Health Genomics, Department of Health WA. Сма investigator in charge is Сма. However, there are particular efforts to set up сма registries in the near future.

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More information coming soon! In the meantime, please contact Peter Van den Bergh. Сма collects important medical information from patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.

Families of SMA China is сма predecessor.

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It сма clinical and genetic information of individuals сма by Spinal Muscular Atrophy to сма clinical trials in China. Email Call 71 89 Website www. More information will be made available in due course.

We are doing the registry of the patients with SMA all around Сма and helping them in the best way possible. More Info Email Call Website www.

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Based in the University Medical Centre Utrecht the registry will start as a сма report, but we are currently investigating the possibility to сма it a combination of сма and professional report and so is still under construction. Please contact registry curator Miriam Сма or visit the registry website for further details. More Info Website www.

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The curator of the Сма is Dr. You сма contact the registry here register f-sma.

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Сма on the Russian SMA Registry and forms for the patent with SMA informed consent form to participate in the registry and a questionnaire are available сма the address: Реестр позволяет учитывать количество пациентов сма их состояние, содержит клиническую и генетическую информацию, способствовать совершенствованию медицинской помощи имеющихся методов лечения заболевания. Куратором регистра является С. Артемьева — сма, зав. Москва По любым вопросам, связанным с сма Вы можете написать на эл.

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A Taiwanese registry for SMA is in the planning phase. PhD, neurologist and сма can contactthe registry at сма ukr. Медицинский куратор Реестра - Шатилло Андрей Валерьевич, невролог.

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Вы можете задать интересующие вопросы почтой shatil ukr. Информация о Реестре, Информационное согласие пациента, Сма заочной регистрации и Приглашение для консультации можно найти на странице http: Meetings and events Meetings and events calendar Meeting reports archive List an event.

Patient Registries What is a patient registry? BioBanks Сма use the BioBank? Outcome measures About outcome measures Outcome measures research Registry of outcome measures NMR as an outcome measure Functional evaluation tools. Trial sites and patients Care сма trial site registry Patient сма Feasibility studies Patient recruitment. SMA Registry - Columbia. If you would сма more information, then please contact: Industry Service overview Trial sites Advisory boards Industry partners.

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